The NECST Registry
Welcome to the National Endometriosis Clinical and Scientific Trials (NECST) Registry to improve endometriosis care
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Overview
The NECST Registry aims to build a complete picture of how endometriosis affects people’s lives. To do this the NECST Registry collects information over time from people living with endometriosis, endometriosis-like symptoms or endometriosis-related conditions (like adenomyosis). The information will be used by clinicians and researchers to improve care, develop better treatment options and more affordable medicine for those living with endometriosis, opens in a new window and adenomyosis, opens in a new window.
It’s not known what causes endometriosis and it can only be diagnosed with surgery. As a person living with endometriosis, your voice could be the start of a breakthrough to improve understanding of the condition and how it can be best managed. By taking part in the NECST Registry, opens in a new window, you’ll be joining others who also believe research is the key to finding answers for endometriosis.
FAQ
Endorsements
This project is endorsed by the following Endometriosis Consumer Advocacy organisations:
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Research Affiliations
EndoZone, opens in a new window is a National Endometriosis Digital Health Platform co-created by researchers, clinicians and the endometriosis community.
Australasian Interdisciplinary Researchers in Endometriosis (AIRE) is an interdisciplinary initiative designed to identify gaps in research and clinical practice that matter to people with endometriosis, to address those gaps through collaborative high-quality research and funding applications, and to elevate the voices of people living with endometriosis. This group is comprised of endometriosis and pelvic pain academics, clinicians, and established endometriosis advocacy members.
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