Ms Fleur Le Marne

Fleur Le Marne is a conjoint lecturer with the University of New South Wales Faculty of Medicine and Health and currently employed by the Sydney Children’s Hospital in a research and education role. Her interdisciplinary research includes a focus on epilepsy, neurogenetics, comorbidities, health improvement, and the provision of high-quality educational resources for patients with epilepsy and for the caregivers of children with severe neurodevelopmental conditions, along with the clinicians involved in their care.

Fleur is a member of the Collaboration on Genetic Epilepsies and Neurogenetics, Sydney Children’s Hospitals Network (CoGenes) which has been established to ensure children born with genetic brain disorders get the best medical care and supports to enable them and their families to live happy and fulfilled lives. As part of this collaboration, Fleur is currently a co-investigator on the 'ClinEquip' study exploring how to best equip clinicians to navigate and manage severe neurogenetic disease, and the 'GenECompass' project evaluating an education service creating and linking families and clinicians with the highest quality information about developmental and epileptic encephalopathies. 

Fleur has recently completed research exploring the ongoing learning needs of Australian paediatricians and paediatric trainees and currently coordinates a neurology outreach programme delivered by Associate Professor Annie Bye for over 300 paediatricians and paediatric trainees across Australia.

Fleur has also collaborated with a multidisciplinary team to create a range of educational resources to improve the care of young people with epilepsy. These include educational videos on Living Well with Epilepsy, First Seizure, Safe use of Midazolam, Adolescent Epilepsy Education, EpApp - an app for young people with epilepsy, and Finding A Way - a suite of video and written resources to support caregivers of children with severe neurodevelopmental conditions. Each of these educational resources are available on the Paediatric Epilepsy Network NSW website (www.pennsw.org.au), of which Fleur has been the website editor since 2015.

Fleur holds a Master of Clinical Neuropsychology (with distinction) (Macquarie University), a Bachelor of Social Science (Psychology) (1st class Hons) (Charles Sturt University),  and a Bachelor of Business (Australian Catholic University). She was awarded the Macquarie University Vice Chancellor's Commendation for Academic Excellence for high academic achievement throughout the Master of Clinical Neuropsychology and received the Charles Sturt University Honours Year Academic Scholarship.

Before working at the Sydney Children's Hospital in Randwick, Fleur worked for the NHS Education for Scotland Special Health Board across a range of education, training and development projects to support clinicians. Projects included the Flying Start national development programme for newly qualified nurses, the Advanced Scrub Practitioner Framework, the Nurse Endoscopist Development Framework, Numeracy for Nursing, and the Health Care Support Workers Toolkit, among others. 

Research Interests

• Medical Education
• Health literacy
• Complex Epilepsy
• Neurodevelopmental conditions
• Neurogenetic brain conditions
• Epilepsy and comorbidities

Awards

• 2024: SCHN Excellent People Awards Nominee - For excellence in Health Safety and Wellbeing
• 2017: Scientific Merit Award – Epilepsy Society of Australia - In recognition of outstanding scientific poster presentation: EpApp: Development and Evaluation
• 2017: Wolf Dalton Travel Scholarship - Development and Evaluation of a Smartphone app for adolescents with epilepsy
• 2017: Finalist – SCHN Quality Improvement Awards - An App for adolescents with epilepsy: Design and Evaluation of EpApp
• 2016: Finalist (Highly Commended) – SCHN Quality Improvement Awards - Development & Evaluation of an E-learning resource on approach to First Seizure
• 2014: Vice Chancellors Commendation for Academic Excellence, Macquarie University - Recognising attainment of academic excellence throughout the course: Master of Clinical Neuropsychology
• 2006: Honours Year Academic Scholarship, Charles Sturt University - Recognising high academic attainment throughout the course: B.Soc.Sc (Psych.)(Hons)

Educational Resource Collaborations

• 2015 - Current: Website Editor – Paediatric Epilepsy Network NSW (PENNSW)
• 2020: Video development and evaluation - ‘Finding a Way’ suite of positive psychology-informed videos (for families of children with severe early-onset genetic epilepsy)
• 2020: Video development – Ketogenic Diet: An Introduction video (for parents of children on the Ketogenic Diet)
• 2019: Redesign and launch of PENNSW website: www.pennsw.org.au
• 2019: Development: Epilepsy Education Video series for teens (for adolescents with epilepsy)
• 2018: Video development - Living Well with Epilepsy video (for adolescents with epilepsy)
• 2018: Video development and evaluation - First Seizure video (for parents after a child’s first seizure)
• 2018: Video development – Using Midazolam video (for Parents of a child prescribed midazolam)
• 2016/2017: Design, development and evaluation of EpApp (smartphone app for adolescents with epilepsy and their caregivers)
• 2015/2016: Design, development and evaluation of a First seizure E-learning Resource for paediatricians and paediatric trainees.