Dr Eden Robertson

Dr Eden Robertson

Postdoctoral Fellow
  • Bachelor of Psychology (Honours), Macquarie University
  • Graduate Certificate in Adolescent Health and Wellbeing, University of Melbourne
  • PhD (Medicine, Paediatrics), UNSW Sydney
  • Principles of Project Management, Open Universities, University of South Australia
  • Foundations of University Learning and Teaching, UNSW Sydney
Medicine & Health
School of Clinical Medicine

Dr Eden Robertson is an experienced psychosocial researcher, with a special interest in supporting children with a serious illness and their families. Dr Robertson has completed a Bachelors of Psychology (Honours), Graduate Certificate in Adolescent and Young Adult Health and Wellbeing, and a PhD in childhood cancer (2019) - for which she earnt a UNSW Dean's Award for Outstanding PhD Theses. In 2020, Eden received a prestigious Fulbright Scholarship which she undertook at St Jude Children's Research Hospital in Memphis, TN. During her time in Memphis, she undertook research with the Quality of Life team to better support children and their families at end-of-life and into bereavement. 

Despite being part-time in academic since her PhD conferral (2019-2024), Eden has an h-index of 15 and nearly 1,000 citations. She is an effective science communiator and frequently invited to speak and host workshops for students and ECRs. Complementing her academic career, Eden has held senior roles with national for-purpose organisations and is a Board Director for the Association for the Wellbeing of Children in Healthcare. 

Eden contributes to the broader research community as a grant reviewer, Executive Management Group member for the Kids Cancer Alliance, organising committee member for the Tow Research Awards, and supervisor for PhD Candidates and medical students for their fourth year research projects. 

Driven by the need to improve the wellbeing of children and young people with a serious illness, Eden takes pride in conducting meaningful research that can be implemented to bring about positive change.

Phone
+61-2-9348 0708
Location
Level 1, Bioscience Sciences South Building - E26
  • Journal articles | 2024
    Easpaig BNG; Newman B; Johnson J; Laidsaar-Powell R; Sansom-Daly UM; Jones L; Hofstätter L; Robertson EG; Mears S; Sattarshetty K; Harrison R, 2024, 'Supporting Carers: Study Protocol of a Meta-Review of Psychosocial Interventions for Carers of People With Cancer', JMIR Research Protocols, 13, http://dx.doi.org/10.2196/56403
    Journal articles | 2024
    Easpaig BNG; Newman B; Johnson J; Sansom-Daly UM; Jones L; Hofstätter L; Robertson EG; Harrison R, 2024, 'Adapting a Preparatory Skills-Building Programme for Carers of People With Cancer Through Co-Design: The iCanSupport Project', Health Expectations, 27, http://dx.doi.org/10.1111/hex.70061
    Journal articles | 2024
    Kelada L; Jaaniste T; Cuganesan A; Chin WLA; Tan SC; Wu J; Ilin R; Robertson E; Drew D; Wakefield CE, 2024, 'Illness-related communication between siblings and parents of children with chronic illness and life-limiting conditions: A qualitative analysis', Palliative and Supportive Care, http://dx.doi.org/10.1017/S1478951524001056
    Journal articles | 2024
    Kelada L; Robertson EG; McKay S; McGill BC; Daly R; Mazariego C; Taylor N; Tyedmers E; Armitage N; Evans HE; Wakefield CE; Ziegler DS, 2024, 'Communicating with families of young people with hard-to-treat cancers: Healthcare professionals’ perspectives on challenges, skills, and training', Palliative and Supportive Care, 22, pp. 539 - 545, http://dx.doi.org/10.1017/S1478951523001992
    Journal articles | 2024
    Rich V; Plummer K; Padhy S; Barratt T; Tran J; Treadgold C; Robertson EG, 2024, 'Captains on call: A qualitative investigation of an intervention to support children with retinoblastoma undergoing regular eye examinations', Psycho-Oncology, 33, http://dx.doi.org/10.1002/pon.6315
    Journal articles | 2024
    Robertson EG; Hetherington K; Daly R; Donoghoe MW; Handelsman N; Ziegler DS; Wakefield CE, 2024, 'The feasibility and acceptability of collecting psychosocial outcome measures embedded within a precision medicine trial for childhood cancer', Cancer Medicine, 13, http://dx.doi.org/10.1002/cam4.7339
    Journal articles | 2024
    Robertson EG; Kelada L; Best S; Goranitis I; Pierce K; Roberts NJ; Sachdev R; Le Marne F; Macintosh R; Beavis E; Bye A; Palmer EE, 2024, 'Quality of life in caregivers of a child with a developmental and epileptic encephalopathy', Developmental Medicine and Child Neurology, 66, pp. 206 - 215, http://dx.doi.org/10.1111/dmcn.15695
    Journal articles | 2024
    Robertson EG; Kelada L; Ilin R; Palmer EE; Bye A; Jaffe A; Kennedy SE; Ooi CY; Drew D; Wakefield CE, 2024, 'Psychological wellbeing among parents of a child living with a serious chronic illness: A cross-sectional survey study', Journal of Child Health Care, http://dx.doi.org/10.1177/13674935241238485
    Journal articles | 2024
    Robertson EG; Komesaroff R; Eisenstat DD; Robertson A; Ludlow LE, 2024, 'A Pilot Evaluation of an Educational Video to Support Consent to a Pediatric Malignancy Biobank', Biopreservation and Biobanking, http://dx.doi.org/10.1089/bio.2024.0011
    Journal articles | 2023
    Garcia-Quintero X; Cleves D; Cuervo MI; McNeil M; Salek M; Robertson EG; Gomez W; Baker JN; Kaye EC, 2023, 'Communication of Early Integration of Palliative Care for Children with Cancer in Latin America: The Care as a Vessel Metaphor', JCO Global Oncology, 9, http://dx.doi.org/10.1200/GO.22.00281
    Journal articles | 2023
    Gereis JM; Hetherington K; Robertson EG; Daly R; Donoghoe MW; Ziegler DS; Marshall GM; Lau LMS; Marron JM; Wakefield CE, 2023, 'Parents’ and adolescents’ perspectives and understanding of information about childhood cancer precision medicine', Cancer, 129, pp. 3645 - 3655, http://dx.doi.org/10.1002/cncr.34914
    Journal articles | 2023
    Pitt E; Bradford N; Robertson E; Sansom-Daly UM; Alexander K, 2023, 'The effects of cancer clinical decision support systems on patient-reported outcomes: A systematic review', European Journal of Oncology Nursing, 66, http://dx.doi.org/10.1016/j.ejon.2023.102398
    Journal articles | 2023
    Robertson EG; Roberts NJ; Le Marne F; Beavis E; Macintosh R; Kelada L; Best S; Goranitis I; Pierce K; Gill D; Sachdev R; Bye A; Palmer EE, 2023, '“Somewhere to turn to with my questions”: A pre-post pilot of an information linker service for caregivers who have a child with a Developmental and Epileptic Encephalopathy', European Journal of Paediatric Neurology, 47, pp. 94 - 104, http://dx.doi.org/10.1016/j.ejpn.2023.09.010
    Journal articles | 2023
    Robertson Eden G; Josie C; Carlos T; Baker Justin N; Lisa C; Spraker-Perlman Holly L; Kaye Erica C, 2023, 'Medical experts and trusted confidants: parent perceptions of the clinician-parent relationship in childhood cancer', Supportive Care in Cancer, 31, http://dx.doi.org/10.1007/s00520-023-07575-z
    Journal articles | 2023
    Signorelli C; Robertson EG; Valentin C; Alchin JE; Treadgold C, 2023, 'A Review of Creative Play Interventions to Improve Children’s Hospital Experience and Wellbeing', Hospital Pediatrics, 13, pp. E355 - E364, http://dx.doi.org/10.1542/hpeds.2022-006994
    Journal articles | 2023
    Wakefield CE; Hetherington K; Robertson EG; Donoghoe MW; Hunter JD; Vetsch J; Marron JM; Tucker KM; Marshall GM; Broom A; Haber M; Tyrrell V; Malkin D; Lau L; Mateos MK; O’Brien TA; Ziegler DS, 2023, 'Hopes, concerns, satisfaction and regret in a precision medicine trial for childhood cancer: a mixed-methods study of parent and patient perspectives', British Journal of Cancer, 129, pp. 1634 - 1644, http://dx.doi.org/10.1038/s41416-023-02429-1
    Journal articles | 2023
    Zavadil J; Singh M; Robertson EG; Clark L; Snaman JM; McNeil M; Acerra A; Baker JN, 2023, 'Going Virtual: Adapting an Institutional Annual Bereavement Event During the COVID-19 Pandemic', Journal of Pediatrics, 257, http://dx.doi.org/10.1016/j.jpeds.2023.03.007
    Journal articles | 2022
    Gereis J; Hetherington K; Ha L; Robertson EG; Ziegler DS; Barlow-Stewart K; Tucker KM; Marron JM; Wakefield CE, 2022, 'Parents’ understanding of genome and exome sequencing for pediatric health conditions: a systematic review', European Journal of Human Genetics, 30, pp. 1216 - 1225, http://dx.doi.org/10.1038/s41431-022-01170-2
    Journal articles | 2022
    Hunter JD; Robertson EG; Hetherington K; Ziegler DS; Marshall GM; Kirk J; Marron JM; Denburg AE; Barlow-Stewart K; Warby M; Tucker KM; Lee BM; O’Brien TA; Wakefield CE; O'Brien T, 2022, 'What’s in a Name? Parents’ and Healthcare Professionals’ Preferred Terminology for Pathogenic Variants in Childhood Cancer Predisposition Genes', Journal of Personalized Medicine, 12, pp. 1327, http://dx.doi.org/10.3390/jpm12081327
    Journal articles | 2022
    Robertson E; Treadgold C; Cosby I; Sinclair M; Elsmore B; Ellis R; Franken C, 2022, 'Facilitating the Voice of Adolescents in Hospitals Through Art: A Case Report', Journal of Adolescent Health, 70, pp. 507 - 513, http://dx.doi.org/10.1016/j.jadohealth.2021.09.027
    Journal articles | 2022
    Robertson EG; Kelada L; Best S; Goranitis I; Grainger N; Le Marne F; Pierce K; Nevin SM; Macintosh R; Beavis E; Sachdev R; Bye A; Palmer EE, 2022, 'Acceptability and feasibility of an online information linker service for caregivers who have a child with genetic epilepsy: A mixed-method pilot study protocol', BMJ Open, 12, pp. e063249, http://dx.doi.org/10.1136/bmjopen-2022-063249
    Journal articles | 2021
    Robertson EG; Wakefield CE; Tsoli M; Kellie SJ; Alvaro F; Gifford AJ; Weber MA; Rodriguez M; Kirby M; Ziegler DS, 2021, 'Parents' experiences of postmortem tumor donation for high-grade gliomas: Benefits and suggested improvements', Neuro-Oncology Advances, 3, pp. vdab087, http://dx.doi.org/10.1093/noajnl/vdab087
    Journal articles | 2021
    Treadgold C; Robertson E; Parker B, 2021, 'Starlight's “Captains on Call” Initiative: A partnership model that aims to positively distract children during medical procedures', International Journal of Integrated Care, 20, pp. 109 - 109, http://dx.doi.org/10.5334/ijic.s4109
    Journal articles | 2021
    Wakefield CE; Sansom‐daly UM; McGill BC; Hetherington K; Ellis SJ; Robertson EG; Donoghoe MW; McCarthy M; Kelada L; Girgis A; King M; Grootenhuis M; Anazodo A; Patterson P; Lowe C; Dalla‐pozza L; Miles G; Cohn RJ; Sansom-Daly U, 2021, 'Providing psychological support to parents of childhood cancer survivors: ‘cascade’ intervention trial results and lessons for the future', Cancers, 13, pp. 5597, http://dx.doi.org/10.3390/cancers13225597
    Journal articles | 2020
    Buchhorn-White J; Robertson EG; Wakefield CE; Cohen J, 2020, 'A decision aid for nutrition support is acceptable in the pediatric hospital setting', Journal of Pediatric Nursing, 55, pp. 165 - 173, http://dx.doi.org/10.1016/j.pedn.2020.08.013
    Journal articles | 2020
    Robertson E; Treadgold C; Parker B; Quinn L, 2020, 'Positive distraction for children during burn wound care in Australia — An evaluation of the ‘Captains on Call’ pilot', Journal of Pediatric Nursing, 54, pp. 10 - 17, http://dx.doi.org/10.1016/j.pedn.2020.05.001
    Journal articles | 2020
    Robertson EG; Cohen J; Signorelli C; Grant DM; Fardell JE; Wakefield CE, 2020, 'What instruments should we use to assess paediatric decision-making interventions? A narrative review', Journal of Child Health Care, 24, pp. 458 - 472, http://dx.doi.org/10.1177/1367493519869717
    Journal articles | 2019
    Robertson EG; Wakefield CE; Cohn RJ; Battisti RA; Donoghoe MW; Ziegler DS; Fardell JE; Mitchell R; O'Brien TA, 2019, 'Piloting a parent and patient decision aid to support clinical trial decision making in childhood cancer', Psycho-Oncology, 28, pp. 1520 - 1529, http://dx.doi.org/10.1002/pon.5109
    Journal articles | 2019
    Robertson EG; Wakefield CE; Shaw J; Darlington AS; McGill BC; Cohn RJ; Fardell JE, 2019, 'Decision-making in childhood cancer: parents’ and adolescents’ views and perceptions', Supportive Care in Cancer, 27, pp. 4331 - 4340, http://dx.doi.org/10.1007/s00520-019-04728-x
    Journal articles | 2018
    Robertson EG; Wakefield CE; Cohn RJ; O'Brien T; Ziegler DS; Fardell JE, 2018, 'The development of delta: Using agile to develop a decision aid for pediatric oncology clinical trial enrollment', JMIR Research Protocols, 7, pp. e119, http://dx.doi.org/10.2196/resprot.9258
    Journal articles | 2018
    Robertson EG; Wakefield CE; Signorelli C; Cohn RJ; Patenaude A; Foster C; Pettit T; Fardell JE, 2018, 'Strategies to facilitate shared decision-making about pediatric oncology clinical trial enrollment: A systematic review', Patient Education and Counseling, 101, pp. 1157 - 1174, http://dx.doi.org/10.1016/j.pec.2018.02.001
    Journal articles | 2018
    Sansom-Daly UM; Wakefield CE; Bryant RA; Patterson P; Anazodo A; Butow P; Sawyer SM; McGill BC; Evans HE; Cohn RJ; Robertson E, 2018, 'Feasibility, acceptability, and safety of the Recapture Life videoconferencing intervention for adolescent and young adult cancer survivors', Psycho-Oncology, 28, pp. 284 - 292, http://dx.doi.org/10.1002/pon.4938
    Journal articles | 2018
    Sansom-Daly UM; Wakefield CE; Robertson EG; McGill BC; Wilson HL; Bryant RA, 2018, 'Adolescent and young adult cancer survivors' memory and future thinking processes place them at risk for poor mental health', Psycho-Oncology, 27, pp. 2709 - 2716, http://dx.doi.org/10.1002/pon.4856
    Journal articles | 2018
    Vetsch J; Wakefield CE; Robertson EG; Trahair TN; Mateos MK; Grootenhuis M; Marshall GM; Cohn RJ; Fardell JE, 2018, 'Health-related quality of life of survivors of childhood acute lymphoblastic leukemia: a systematic review', Quality of Life Research, 27, pp. 1431 - 1443, http://dx.doi.org/10.1007/s11136-018-1788-5
    Journal articles | 2017
    May E; mcgill B; Anazodo A; wakefield C; Sansom-Daly U; Robertson E, 2017, 'Adolescent and Young Adult Cancer Survivors’ Experiences of the Healthcare System: A Qualitative Study.', Journal of Adolescent and Young Adult Oncology, 7, pp. 88 - 96, http://dx.doi.org/10.1089/jayao.2017.0015
    Journal articles | 2017
    McGill BC; Sansom-Daly UM; Wakefield CE; Ellis SJ; Robertson EG; Cohn RJ, 2017, 'Therapeutic Alliance and Group Cohesion in an Online Support Program for Adolescent and Young Adult Cancer Survivors: Lessons from "recapture Life"', Journal of Adolescent and Young Adult Oncology, 6, pp. 568 - 572, http://dx.doi.org/10.1089/jayao.2017.0001
    Journal articles | 2017
    Signorelli C; Wakefield CE; Fardell JE; Wallace WHB; Robertson EG; McLoone JK; Cohn RJ, 2017, 'The impact of long-term follow-up care for childhood cancer survivors: A systematic review', Critical Reviews in Oncology/Hematology, 114, pp. 131 - 138, http://dx.doi.org/10.1016/j.critrevonc.2017.04.007
    Journal articles | 2016
    Aralova M; Robertson E; Putrya A; Goncharova L; Wakefield C; Aslanyan K, 2016, 'Relationships between Russian mothers and their children with, and without, cancer: A controlled study', International Journal of Healthcare, 2, http://dx.doi.org/10.5430/ijh.v2n2p73
    Journal articles | 2016
    Ellis SJ; Wakefield CE; McLoone JK; Robertson EG; Cohn RJ, 2016, 'Fertility concerns among child and adolescent cancer survivors and their parents: A qualitative analysis', Journal of Psychosocial Oncology, 34, pp. 347 - 362, http://dx.doi.org/10.1080/07347332.2016.1196806
    Journal articles | 2016
    Robertson EG; Sansom-Daly UM; Wakefield CE; Ellis SJ; Mcgill BC; Doolan EL; Cohn RJ, 2016, 'Sexual and romantic relationships: Experiences of adolescent and young adult cancer survivors', Journal of Adolescent and Young Adult Oncology, 5, pp. 286 - 291, http://dx.doi.org/10.1089/jayao.2015.0061
    Journal articles | 2016
    Sansom-Daly UM; Lin M; Robertson EG; Wakefield CE; McGill BC; Girgis A; Cohn RJ, 2016, 'Health Literacy in Adolescents and Young Adults: An Updated Review', Journal of Adolescent and Young Adult Oncology, 5, pp. 106 - 118, http://dx.doi.org/10.1089/jayao.2015.0059
    Journal articles | 2016
    Sansom-Daly UM; McGill BC; Anazodo AC; Plaster M; Maguire F; O'Dwyer C; Ellis SJ; Robertson EG; Cohn RJ; Wakefield CE, 2016, 'The Reality of Relapse: Impact of Cancer Relapse on Survivorship Interventions and Patient-Reported Outcomes Data', Pediatric Blood and Cancer, 63, pp. 1492 - 1493, http://dx.doi.org/10.1002/pbc.26001
    Journal articles | 2016
    Wakefield CE; Sansom-Daly UM; McGill BC; Ellis SJ; Doolan EL; Robertson EG; Mathur S; Cohn RJ, 2016, 'Acceptability and feasibility of an e-mental health intervention for parents of childhood cancer survivors: “Cascade”', Supportive Care in Cancer, 24, pp. 2685 - 2694, http://dx.doi.org/10.1007/s00520-016-3077-6
    Journal articles | 2015
    Robertson E; Wakefield C; Marshall K; Sansom-Daly U, 2015, 'Strategies to improve adherence to treatment in adolescents and young adults with cancer: a systematic review', Clinical Oncology in Adolescents and Young Adults, Volume 5, pp. 35 - 49, http://dx.doi.org/10.2147/coaya.s85988
  • Preprints | 2024
    Nic Giolla Easpaig B; Newman B; Johnson J; Laidsaar-Powell R; Sansom-Daly UM; Jones L; Hofstätter L; Robertson EG; Mears S; Sattarshetty K; Harrison R, 2024, Supporting Carers: Study Protocol of a Meta-Review of Psychosocial Interventions for Carers of People With Cancer (Preprint), http://dx.doi.org/10.2196/preprints.56403
    Preprints | 2024
    Nic Giolla Easpaig B; Newman B; Johnson J; Laidsaar-Powell R; Sansom-Daly UM; Jones L; Hofstätter L; Robertson EG; Mears S; Sattarshetty K; Harrison R, 2024, Supporting carers: Study protocol of a meta-review of psychosocial interventions for carers of people with cancer, http://dx.doi.org/10.1101/2024.01.30.24302029
    Preprints | 2024
    Nic Giolla Easpaig B; Newman B; Johnson1 J; Sansom-Daly U; Jones L; Hofstätter L; Robertson EG; Harrison R, 2024, Adapting a preparatory skills-building program for carers of people with cancer through co-design: The iCanSupport Project., http://dx.doi.org/10.31219/osf.io/4xcsv
    Reports | 2024
    Robertson EG; Hetherington K; Ayton L; Boyd L; Feller H; Hall J; Grigg J; Jamieson R; Karandrews S; Ma A; Prain M; Shepard E; Simunovic M; Yamamoto K; Gonzalez-Cordero A, 2024, Research priorities for Inherited Retinal Diseases in Australia: A James Lind Alliance Priority Setting Partnership, 1, http://dx.doi.org/10.26190/unsworks/30432
    Preprints | 2023
    Kelada L; Robertson E; McKay S; McGill B; Daly R; Mazariego C; Taylor N; Tyedmers E; Evans HE; Wakefield C; Ziegler D, 2023, Communicating with families of young people with hard-to-treat cancers: Healthcare professionals’ perspectives on challenges, skills, and training, http://dx.doi.org/10.22541/au.168438965.52340962/v1
    Conference Abstracts | 2022
    Gereis J; Hetherington K; Robertson E; Ziegler D; Wakefield C, 2022, 'PARENTS' AND PATIENTS' UNDERSTANDING OF A PRECISION MEDICINE TRIAL FOR HIGH-RISK CHILDHOOD CANCER', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 69, pp. S399 - S399, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000859203901450&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
    Preprints | 2022
    Pitt E; Bradford N; Robertson E; Sansom-Daly U; Alexander K, 2022, The effects of cancer clinical decision support systems on patient-reported outcomes: A systematic review, , http://dx.doi.org/10.21203/rs.3.rs-1480070/v1
    Conference Papers | 2020
    Robertson E; Wakefield C; Hetherington K; Ziegler D, 2020, 'Parents' Expectations and Experiences of a Precision Medicine Trial for High-Risk Paediatric Cancer', in PEDIATRIC BLOOD & CANCER, WILEY, pp. S47 - S47, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000581769200091&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
    Conference Abstracts | 2019
    Robertson E; Wakefield C; Cohn R; Robert B; Donoghoe M; Ziegler D; Fardell J; Mitchell R; O'Brien T, 2019, 'Delta: A Parent and Patient Decision Aid to Support Clinical Trial Decision-Making in Childhood Cancer', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 66, pp. S118 - S118, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000488458001090&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
    Conference Abstracts | 2018
    Robertson E; Wakefield C; Cohn R; Fardell J, 2018, 'The Development of Delta: A Decision Aid to Help Parents Considering Enroling their Child in a Paediatric Oncology Clinical Trial', in PEDIATRIC BLOOD & CANCER, WILEY, Vol. 65, pp. S587 - S587, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000445195005094&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
    Conference Abstracts | 2018
    Robertson E; Wakefield C; Cohn R; McGill B; Fardell J, 2018, 'Decision making in paediatric oncology: experiences and preferences of parents', in PSYCHO-ONCOLOGY, WILEY, Vol. 27, pp. 3 - 3, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000426522700002&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
    Conference Abstracts | 2018
    Robertson E; Wakefield C; Cohn R; O'Brien T; Ziegler D; Fardell J, 2018, 'The development of Delta: a decision aid to help parents considering enroling their child in a paediatric oncology clinical trial', in PSYCHO-ONCOLOGY, WILEY, Vol. 27, pp. 10 - 10, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000426522700019&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
    Conference Abstracts | 2018
    Robertson EG; Mitchell R; Wakefield CE; Lewis P; Cousens N; Marshall GM; Russell SJ; Ziegler DS; Anazodo A; Trahair TN; Barbaric D; Cohn RJ; Alvaro F; O'Brien TA, 2018, 'Enrolment in early phase paediatric oncology clinical trials: the healthcare professionals’ perspective.', Hong Kong, presented at International Psycho-Oncology Society, Hong Kong, 31 October 2018 - 02 November 2018
    Conference Papers | 2018
    Robertson EG; Mitchell R; Wakefield CE; Lewis P; Cousens N; Marshall GM; Russell SJ; Ziegler DS; Anazodo AC; Trahair TN; Barbaric D; Cohn RJ; Alvaro F; O'Brien T, 2018, 'Enrolment in early phase paediatric oncology clinical trials: the healthcare professionals’ perspective (poster)', in Enrolment in early phase paediatric oncology clinical trials: the healthcare professionals’ perspective (poster), Australian and New Zealand Children’s Haematology and Oncology Group (ANZCHOG), Sydney, presented at Australian and New Zealand Children’s Haematology and Oncology Group (ANZCHOG), Sydney, 14 June 2018 - 16 June 2018
    Conference Abstracts | 2018
    Robertson EG; Wakefield CE; Cohn RJ; Fardell JE, 2018, 'The development of Delta: A decision aid to help parents considering enroling their child in a paediatric oncology clinical trial', in PSYCHO-ONCOLOGY, WILEY, Vol. 27, pp. 215 - 215, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000448188000574&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
    Conference Abstracts | 2017
    Robertson E; Fardell J; Cohn R; Wakefield C, 2017, 'Decision making in pediatric oncology: Needs, preferences, and experiences of families', in PSYCHO-ONCOLOGY, WILEY, Vol. 26, pp. 104 - 104, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000407688900277&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
    Conference Papers | 2017
    Robertson EG; Fardell J; Cohn R; Wakefield C, 2017, 'Decision-Making in Pediatric Oncology: Needs, Preferences and Experiences of Families', in PEDIATRIC BLOOD & CANCER, WILEY, pp. S491 - S492, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000408978204230&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
    Conference Abstracts | 2016
    Robertson E; Fardell J; O'Brien T; Cohn R; Mitchell R; Drew D; Ziegler D; Marshall G; Wakefield C, 2016, 'Treatment Decision Making for Young People with Cancer and Their Parents', in PEDIATRIC BLOOD & CANCER, WILEY-BLACKWELL, Vol. 63, pp. S232 - S232, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000384818801393&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1
    Conference Abstracts | 2016
    Wakefield C; Sansom-Daly U; Brittany MG; Robertson E; Ellis S; Marshall K; Hetherington K; Doolan E; Cohn R, 2016, ''Cascade': A randomized trial of online support for parents after their child's cancer treatment', in PSYCHO-ONCOLOGY, WILEY-BLACKWELL, Dublin, Ireland, Vol. 25, pp. 106 - 107, presented at World Congress of Psycho-oncology, Dublin, Ireland, 17 October 2016 - 21 October 2016, http://dx.doi.org/10.1002/pon.v25.S3/issuetoc
    Conference Presentations | 2015
    Sansom-Daly U; Wakefield C; McGill B; Wilson H; Robertson E; Ellis S; Doolan E; Patterson P; Cohn R, 2015, 'Clinical challenges in implementing psychosocial support in the online space: experiences from the 'Recapture Life' trial', Vol. 24, pp. 14 - 14, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000358255000027&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

  • Chief Investigator F (MRFF 2023 National Critical Research Infrastructure: Life and health After Childhood cancEr (LACE) - a national linkage project)
  • Chief Investigator D (2022 Kids Cancer Alliance: Precision medicine for childhood cancer - Understanding and supporting families' information needs)

2024

  • Randwick Clinical Campus Publication Award Q1, 2024
  • UNSW Medicine and Health, Research: Community Engagement Award, nominee

2023 

  • 'Developing Brain' Research Paper Award Recipient
  • Social Impact Measurement Network Australia Collaboration Award – Runner-up

2021

  • 40 Under 40: Most influential Asian-Australian Awards, nominee

2020 

  • Fulbright Postdoctoral Scholar
  • International Society of Pediatric Oncology Young Investigator Award

2019

  • FameLab Australia science communication, semi-finalist 
  • UNSW Dean’s Award for Outstanding PhD Theses

  • International Society of Pediatric Oncology Social Media Award

2018

  • International Society of Pediatric Oncology Social Media Award
  • UNSW Sydney Arc PGC ‘Outstanding Student Award’

Eden is currently undertaking research in low vision. From 2023-2024, Eden led Australia's Inherited Retinal Disease Priority Setting Partnership, which was launched at NSW Parliament House in September 2024. She is now leading several projects exploring community perspectives around cell therapies and organoids.

Eden is skilled in qualitative research and co-design, and passionate about partnering with the community to drive more meaningful impact. 

Alongside these research focusses, Eden continues to collaborate and publish across childhood cancer and other rare diseases such as genetic epilepsy. 

My Research Supervision

2023-2027  

Dr Paranamanage Gayani Kalpana De Silva (PhD Candidate, QUT; secondary supervisor)

Project: Priority Setting Partnership in childhood cancer

 

2020-2023 (submitted October, 2023)

Jessica Gereis (PhD Candidate, UNSW; secondary supervisor)

Project: Communication aid for children and parents enrolled in a precision medicine trial